Wilson's Disease Resources & Information
by Robert S. Stall MD (a Wilson's patient himself)
[Information] [On-Line Discussion Group] [Organizational Links] [Research Studies] [Wilson's Experts & Associations]
 Rob Stall MD November, 2004
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E-mail Dr.
Stall |
Dr. Stall's WD Story |
Information
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Copper Content of Food
(from USDA 8-19-05)
On-Line Discussion Group Back to top
| Sign-up:
WILSONS-LIST The listserver for people interested in the diagnosis & treatment of Wilson's Disease. |
Organizational Links Back to top
| National Organization of Rare
Diseases (NORD) http://www.rarediseases.org/ |
| WDA of Brazil http://doencadewilson.org/ |
| WDA of Denmark http://www.wilsons.dk/ |
| WDA of France http://orphanet.infobiogen.fr/associations/WILSON/WILSON.html |
| WDA of Germany http://www.morbus-wilson.de |
| WDA of Romania http://www.wda-romania.org |
| WDA of Sweden http://hem.passagen.se/wilsons/ |
| WDA of United Kingdom http://www.wilsons-disease.org.uk/ |
| WDA of USA (WDA
International) http://www.wilsonsdisease.org/ |
|
Wilson's Disease Web Site - Israel (in Hebrew only) http://hfmws.110mb.com/ |
Personal Web Pages Back to top
| Ms. Dalia Mikha Melbourne, Victoria Australia http://www.wilsonsdiseaseonline.com/ |
| Dr. Robert Stall Williamsville, NY http://geridoc.net/ |
| Mr. Tom (Billy) Walters Doncaster, UK http://www.bountyhunter.org.uk/ |
Research Studies Back to top
| CURRENT ENROLLING PATIENTS | Dr. Ferenci's Study of Wilson's Disease Subtypes |
| Newly Diagnosed
Wilson's Disease Patients Clinical Trial (current research study comparing tetrathiomolybdate to trientine) For more information, contact the principle investigators, Dr. George Brewer or Dr. Michael Schilsky (see below) |
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| PREVIOUS STUDIES | Protocol 310--Treatment of Wilson's Disease With Zinc |
| Protocol 801--Initial Therapy of Wilson's Disease with Ammonium Tetrathiomolybdate (TM) |
Worldwide Wilson's Experts & Associations Back to top
George
Brewer, MD
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